While doctors and caregivers do play an integral role in the treatment and management of Parkinson’s disease the most important member of any care team is the person diagnosed with Parkinson’s.
Parkinson Society Canada has a variety of resources to help you stay informed to make individual choices. We know that controlling symptoms, managing medications and working with a health care team can be a lot to juggle.
Tapping into some of our self-management resources will enable individuals to retain their independence longer, put less work and stress on their care team and have a better outlook for the future. Here are a few suggestions to get started.
Resources for Self-Management
After receiving a Parkinson’s diagnosis people often don’t know how to proceed. Moving forward towards acceptance, assistance and management of symptoms is much easier with a little guidance. Parkinson Society Canada has helped many people over the years transition into a life with Parkinson’s with as little discomfort as possible.
We took our experience and knowledge and packaged it into the ’10 Steps to Taking Control’ handout. If you or someone you know has recently been diagnosed with Parkinson’s please download the Taking Control guide for free.
Problems with mobility and posture are common Parkinson’s symptoms from one person to the next. Managing those mobility issues means exercising on a regular basis but without a proper exercise regime that can be difficult. That’s why Parkinson Society Canada developed the Exercises for People With Parkinson’s booklet.
This guide will help people with Parkinson’s target maintain a healthier lifestyle and improve their mobility symptoms when they implement the regime a few times a week, or as often as possible. Ask your doctor what level of exercise is right for you and then, get active.
We also offer a ‘Physical Activity and Parkinson’s Disease’ resource on our website, with examples of the types of exercise that can help people with Parkinson’s and what specific symptoms those exercises can improve.
This guide comes with a companion chart to track your progress and is free to download. Visit the Physical Activity and Parkinson’s Disease webpage and download your physical activity tracking chart to help improve your mobility.
Both resources were developed in partnership with the Canadian Physiotherapy Association.
A Guide to the Non-Motor Symptoms of Parkinson’s Disease
People with Parkinson’s learn that the symptoms of Parkinson’s are more than just tremors, problems with posture and low energy reserves. Often people experience difficulty getting a solid night’s sleep, cognitive issues, swallowing problems and even bladder dysfunction. These features are often not identified by or discussed with the family physician.
The Guide to the Non-Motor Symptoms will help you and your doctor identify these symptoms and discuss the best treatment plan. This patient-friendly booklet, and its companion guide for family physicians, is based on research funded in part by Parkinson Society Canada.
I have Parkinson’s Medication Card
Getting your Parkinson’s medications on the regulated schedule prescribed by your doctor is important but others who help you along your journey with Parkinson’s may not realise how important it is.. Invariably, from time to time, people with Parkinson’s will need to visit care facilities, like hospitals, to get additional medical assistance. Keeping the staff informed of your needs isn’t always easy.
Carrying your I have Parkinson’s Medication card will alert staff to the importance of adhering to your medication routine. There is also an education program geared to staff to learn more about Get it on Time that contains handouts and medications schedules that will help your health care team apply medications at your regulated intervals and keep you as healthy as possible during your stay.
Parkinson Society Canada has a wide selection of free resources available for both people with Parkinson’s and their care partners. Stay informed and download the Parkinson’s Facts sheet. Please visit the Resources section of our website to see a full list or contact the regional partner closest to you for more direct assistance.
If you’d like to talk to someone at Parkinson Society Canada about the resources available for free please visit the contact us page of our website or call 1-800-565-3000 for direct assistance.