Resources for Living Well with Parkinson’s

While doctors and caregivers do play an integral role in the treatment and management of Parkinson’s disease the most important member of any care team is the person diagnosed with Parkinson’s.

Parkinson Society Canada has a variety of resources to help you stay informed to make individual choices.  We know that controlling symptoms, managing medications and working with a health care team can be a lot to juggle.

Tapping into some of our self-management resources will enable individuals to retain their independence longer, put less work and stress on their care team and have a better outlook for the future.  Here are a few suggestions to get started.

Resources for Self-Management

Taking Control

After receiving a Parkinson’s diagnosis people often don’t know how to proceed. Moving forward towards acceptance, assistance and management of symptoms is much easier with a little guidance. Parkinson Society Canada has helped many people over the years transition into a life with Parkinson’s with as little discomfort as possible.

We took our experience and knowledge and packaged it into the ’10 Steps to Taking Control’ handout. If you or someone you know has recently been diagnosed with Parkinson’s please download the Taking Control guide for free.

Download the ‘Taking Control – 10 Steps to help you cope’ guide here

Keeping Active

Problems with mobility and posture are common Parkinson’s symptoms from one person to the next. Managing those mobility issues means exercising on a regular basis but without a proper exercise regime that can be difficult. That’s why Parkinson Society Canada developed the Exercises for People With Parkinson’s booklet.

This guide will help people with Parkinson’s target maintain a healthier lifestyle and improve their mobility symptoms when they implement the regime a few times a week, or as often as possible. Ask your doctor what level of exercise is right for you and then, get active.

Download the Exercises for People with Parkinson’s booklet here

We also offer a ‘Physical Activity and Parkinson’s Disease’ resource on our website, with examples of the types of exercise that can help people with Parkinson’s and what specific symptoms those exercises can improve.

This guide comes with a companion chart to track your progress and is free to download. Visit the Physical Activity and Parkinson’s Disease webpage and download your physical activity tracking chart to help improve your mobility.

Both resources were developed in partnership with the Canadian Physiotherapy Association.

A Guide to the Non-Motor Symptoms of Parkinson’s Disease

A Guide to the Non-Motor Symptoms of Parkinson’s DiseasePeople with Parkinson’s learn that the symptoms of Parkinson’s are more than just tremors, problems with posture and low energy reserves. Often people experience difficulty getting a solid night’s sleep, cognitive issues, swallowing problems and even bladder dysfunction. These features are often not identified by or discussed with the family physician.

The Guide to the Non-Motor Symptoms will help you and your doctor identify these symptoms and discuss the best treatment plan. This patient-friendly booklet, and its companion guide for family physicians, is based on research funded in part by Parkinson Society Canada.

Download the Non-Motor Guide here.

I have Parkinson’s Medication Card
Getting your Parkinson’s medications on the regulated schedule prescribed by your doctor is important but others who help you along your journey with Parkinson’s may not realise how important it is.. Invariably, from time to time, people with Parkinson’s will need to visit care facilities, like hospitals, to get additional medical assistance. Keeping the staff informed of your needs isn’t always easy.

Carrying your I have Parkinson’s Medication card will alert staff to the importance of adhering to your medication routine. There is also an education program geared to staff to learn more about Get it on Time that contains handouts and medications schedules that will help your health care team apply medications at your regulated intervals and keep you as healthy as possible during your stay.

Download the ‘Get it on time’ medication card here

Other Resources

Parkinson Society Canada has a wide selection of free resources available for both people with Parkinson’s and their care partners. Stay informed and download the Parkinson’s Facts sheet. Please visit the Resources section of our website to see a full list or contact the regional partner closest to you for more direct assistance.

If you’d like to talk to someone at Parkinson Society Canada about the resources available for free please visit the contact us page of our website or call 1-800-565-3000 for direct assistance.

9 Responses to “Resources for Living Well with Parkinson’s”

  1. 1 Anonymous February 21, 2013 at 4:00 pm

    Recently we had a person in to address our group and she told us about a six week course they run for people with chronic illness ei diabiates post heart operation and other chronic ailments, This course gives advice to the patients on stress management diet and exercise we plan on having such a course for our Parkinson’s group….I will find the proper information on this course and forward it

  2. 2 Maureen & Jim Wilkinson February 21, 2013 at 9:04 pm

    Excellent article

  3. 3 Parkinson Society Canada February 22, 2013 at 10:49 am

    Thank you for your comment. The six-week course you speak of sounds like it would be very beneficial for those with Parkinson’s too. I hope you manage to organise it for your group. All the best.

  4. 4 Parkinson Society Canada February 22, 2013 at 10:51 am

    Thank you for the feedback Maureen and Jim, we’re glad you liked the article!

  5. 5 Myrna Boisse February 22, 2013 at 4:25 pm


  6. 6 George Van Den Bosch February 23, 2013 at 9:40 am

    A useful article. We need more like this.

  7. 7 Parkinson Society Canada February 25, 2013 at 12:54 pm

    Thanks for the feedback, George

  8. 8 Karen April 11, 2013 at 9:45 pm

    I’m looking for appropriate seated exercises for an elderly individual with late-stage Parkinson’s who is a resident of a small town long-term care facility that offers very little physical therapy. The individual has limited mobility and is largely wheelchair bound but is still motivated to perform exercises to help maintain hand dexterity, range of motion, voice control, etc. I would appreciate suggestions for DVDs or publications. Thanks

  9. 9 Parkinson Society Canada April 15, 2013 at 2:22 pm

    Hi Karen: Some of the exercises in our booklet “Exercises for People with Parkinson’s” can be done from a seated position. You can download it at Kudos to this individual for staying motivated to exercise despite how far the disease has progressed!

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All material related to Parkinson's disease contained in Parkinson Post is solely for the information of the reader. It should not be used for treatment purposes. Specific articles reflect the opinion of the writer and are not necessarily the opinion of PSC.

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