Message from the Editor

We all know that living with Parkinson’s isn’t easy. With the right information people with Parkinson’s can empower themselves to make informed treatment choices for their own care. That’s what the June issue of e-Parkinson Post is all about; empowerment for individuals in the Parkinson’s community.

In this issue we talk about the Canadian Clinical Guidelines on Parkinson’s disease, which educates and informs people with Parkinson’s, allowing them to make informed decisions together with their doctor and other health professionals about treatment options such as medications, exercise and even surgery.

We’ve also got some exciting news from the Canada’s Parkinson’s research community. Researchers at McGill University, led by Dr. Edward A. Fon and Dr. Kalle Gehring, have discovered the three-dimensional structure to the protein Parkin. This new knowledge could help scientists develop better treatments for Parkinson’s and even slow down the progression of the disease.

World Parkinson Congress is rapidly approaching and with less than four months until we gather in Montreal, we’re showcasing some of the seminars and workshops that will be running at WPC in October. Remember, registration is now open to the public and the early bird registration deadline ends July 2, 2013. If you want to attend please visit the WPC registration page online and sign up!

Enjoy these updates and send us your comments. We’d like to hear from you.

6 Responses to “Message from the Editor”

  1. 1 Alma Thiessen July 10, 2013 at 8:43 pm

    Hello… my name is Alma Thiessen and I live in Chilliwack, B.C. Canada.
    I was diagnosed with parkensons 8 years ago. I am still able to walk well,
    but my the shaking of my hands and upper body make things difficult.
    I still live alone without any outside care. I take 2 100/25mg levodopa 4xaday
    plus 1 200mg/50mg 4X a day. Not to much help wwith the shaking. Is there
    anyone else like me out there? I wonder if there is any help for me?

  2. 2 Parkinson Society Canada July 11, 2013 at 3:44 pm

    Hi Alma, thanks for sharing your experience with us. Parkinson Society’s regional partners provide information, support services and specialized programs in communities across the country. You may like to contact Parkinson Society British Columbia (PSBC) to find their support group nearest you. Support groups cane be a great source of strength and motivation. PSBC’s can be reached via telephone: 604 662 3240 / toll Free: 1 800 668 3330 or email: Best wishes.

  3. 3 Barbara Williams August 10, 2013 at 5:15 pm

    My husband Peter who is 68 now has 29 out of 30 non-motor symptoms of PD and his life is hell. He said that we wouldn’t let a dog suffer like he does. We would put it down. His biggest complaint is chronic pain and nothing helps. Next is all the mental issues. Anyone else suffering with this out there?

  4. 4 Parkinson Society Canada September 16, 2013 at 11:58 am

    Thank you for your thoughts. Parkinson’s is a tough disease; have you tried connecting with a support group close to where you live?

  5. 5 October 3, 2013 at 1:53 pm

    I have recently found out I have Parkinson’s in my 85 year Until now I have enjoyed good health I am collecting as much information of PD as I can to keep myself informed and I like your epost how often is it issued? please keep me in the loop

  6. 6 Parkinson Society Canada October 4, 2013 at 10:43 am

    Thank you for sharing your news; reading up on PD and staying informed are good choices. e-Parkinson Post is usually published four times a year. To subscribe click here; alternatively if you send your name and email address to and we’ll add you to the mailing list. All the best.

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All material related to Parkinson's disease contained in Parkinson Post is solely for the information of the reader. It should not be used for treatment purposes. Specific articles reflect the opinion of the writer and are not necessarily the opinion of PSC.

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